Output

I. General Public

UPSIDES Newsletters

Reports and experiences

Nixdorf R. (2020). Report on the Train-the-Trainer Workshop in Vienna: Download

Nixdorf R. (2019). Report on the Train-the-Trainer Workshop in Tanzania: Download

Policy briefs

Publications

Journal articles

Haun M, Girit S, Goldfarb Y, Kalha J, Korde P, Kwebiiha E, Moran G, Mtei R, Niwemuhwezi J, Nixdorf R, Nugent L, Puschner B, Ramesh M, Ryan G, Slade M, Charles A, Krumm S (2024). Mental health workers’ perspectives on the implementation of a peer support intervention in five countries: qualitative findings from the UPSIDES study. BMJ open 14:e081963. DOI: 10.1136/bmjopen-2023-081963

Ben-Dor I, Kraus E, Goldfarb Y, Grayzman A, Puschner B, Moran G (2024). Perspectives and Experiences of Stakeholders on Self-Disclosure of Peers in Mental Health Services. Community mental health journal. DOI: 10.1007/s10597-024-01287-2#

Hiltensperger R, Ryan G, Ben-Dor I, Charles A, Epple E, Kalha J, Korde P, Kotera Y, Mpango R, Moran G, Mueller-Stierlin A, Nixdorf R, Ramesh M, Shamba D, Slade M, Puschner B, Nakku J (2024). Implementation of peer support for people with severe mental health conditions in high-, middle- and low-income-countries: a theory of change approach. BMC health services research 24:480. DOI: 10.1186/s12913-024-10990-5

Nixdorf R, Kotera Y, Baillie D, Garber Epstein P, Hall C, Hiltensperger R, Korde P, Moran G, Mpango R, Nakku J, Puschner B, Ramesh M, Repper J, Shamba D, Slade M, Kalha J, Mahlke C (2024). Development of the UPSIDES global mental health training programme for peer support workers: Perspectives from stakeholders in low, middle and high-income countries. PloS one 19:e0298315. DOI: 10.1371/journal.pone.0298315

Haun M, Adler Ben-Dor I, Hall C, Kalha J, Korde P, Moran G, Mueller-Stierlin A, Niwemuhwezi J, Nixdorf R, Puschner B, Ramesh M, Charles A, Krumm S (2024) Perspectives of key informants before and after implementing UPSIDES peer support in mental health services: qualitative findings from an international multi-site study. BMC Health Serv Res 24, 159. DOI: 10.1186/s12913-024-10543-w

Ramesh M, Charles A, Grayzman A, Hiltensperger R, Kalha J, Kulkarni A, Mahlke C, Moran G, Mpango R, Mueller-Stierlin A, Nixdorf R, Ryan G, Shamba D, Slade M (2023) Societal and organisational influences on implementation of mental health peer support work in low-income and high-income settings: a qualitative focus group study. BMJ Open 2023;13:e058724. DOI:10.1136/bmjopen-2021-058724

Goldfarb Y, Grayzman A, Meir L, Grundman S, Rabinian M, Lachman M, Epstein P, Ben-Dor I, Naaman A, Puschner B, Moran G (2022, online ahead of print). UPSIDES Mental Health Peer Support in Face of the COVID-19 Pandemic: Actions and Insights. Community Ment Health J. DOI: 10.1007/s10597-022-01030-9

Girit S, Müller-Stierlin A, Hiltensperger R, Wenzel L, Lohner M, Mahlke C, Nixdorf R, Puschner B (2022, online ahead of print). Eine Theory of Change zur erfolgreichen Implementierung von Peer-Begleitung für Menschen mit schweren psychischen Erkrankungen in Deutschland [Successful implementation of peer support for people with severe mental illness in Germany: a Theory of Change approach]. Psychother Psychosom Med Psychol. DOI: 10.1055/a-1827-4040

Krumm S, Haun M, Hiller S, Charles A, Kalha J, Niwemuhwezi J, Nixdorf R, Puschner B, Ryan G, Shamba D, Garber Epstein P, Moran G (2022) Mental health workers' perspectives on peer support in high-, middle- and low income settings: a focus group study. BMC Psychiatry 22, 604. DOI: 10.1186/s12888-022-04206-5

Charles A, Korde P, Newby C, Grayzman A, Hiltensperger R, Mahlke C, Moran G, Nakku J, Niwemuhwezi J, Nixdorf R, Paul E, Puschner B, Ramesh M, Ryan G, Shamba D, Kalha J, Slade M (2022) Proportionate translation of study materials and measures in a multinational global health trial: methodology development and implementation. BMJ Open 2022;12:e058083. DOI: 10.1136/bmjopen-2021-058083

Nixdorf R, Nugent L, Aslam R, Barber S, Charles A, Gai Meir L, Grayzman A, Hiltensperger R, Kalha J, Korde P, Mtei R, Niwemuhwezi J, Ramesh M, Ryan G, Slade M, Wenzel L, Mahlke C (2022) A multi-national peer support intervention: the UPSIDES pilot phase. Advances in Mental Health, DOI: 10.1080/18387357.2021.2020140

Haun M, Bilmayer S, Heuer I, Mahlke C, Puschner B, Wagner M, Nixdorf R (2021) UPSIDES – Erfahrungen in Deutschland aus der Sicht von Peer Begleiter*innen und Trainer*innen [UPSIDES – experiences in Germany from the perspectives of peer support workers and peer trainers]. Sozialpsychiatrische Informationen, 51(3), 15-18. doi: 10.1486/SI-2021-03_15

Charles A, Nixdorf R, Ibrahim N, Gai Meir L, Mpango R, Ngakongwa F, Nudds H, Pathare S, Ryan G, Repper J, Wharrad H, Wolf P, Slade M, Mahlke C (2021) Initial training for mental health peer support workers: international Delphi Consultation, JMIR Mental Health, 5, e25528. doi: 10.2196/25528

Haun M, Nixdorf R, Heuer I, Wagner M, Bilmayer S, Mahlke C, Puschner B (2021). UPSIDES Peer-Begleitung – Gemeinsam Krisen bewältigen [UPSIDES peer support – overcoming crises together]. Gesundheitswesen, 83(04):241. doi: 10.1055/a-1395-1505

Ibrahim N, Thompson D, Nixdorf R, Kalha J, Mpango R, Moran G, Mueller-Stierlin A, Ryan G, Mahlke C, Shamba D, Puschner B, Repper J, Slade M (2020). A systematic review of influences on implementation of peer support work for adults with mental health problems. Soc Psychiatr Psychiatr Epidemiol, 55(3):285-93. doi: 10.1007/s00127-019-01739-1

Moran G, Kalha J, Müller-Stierlin A, Kilian R, Krumm S, Slade M, Charles A, Mahlke CI, Nixdorf R, Basangwa D, Nakku J, Mpango R, Ryan G, Shamba D, Ramesh M, Ngakongwa F, Grayzman A, Pathare S, Mayer B, Puschner B (2020). Peer support for people with severe mental illness versus usual care in high-, middle- and low-income countries: study protocol for a pragmatic multicentre randomised controlled trial (UPSIDES-RCT). Trails, 21(1):371. doi:10.1186/s13063-020-4177-7

Mpango R, Kalha J, Shamba D, Ramesh M, Ngakongwa F, Kulkarni A, Korde P, Nakku J and Ryan GK (2020). Challenges to peer support in low- and middle-income countries during COVID-19. Globalization and Health, 16(1):90. DOI: https://doi.org/10.1186/s12992-020-00622-y

Charles A, Thompson D, Nixdorf R, Ryan G, Shamba D, Kalha J, Moran G, Hiltensperger R, Mahlke C, Puschner B, Repper J, Slade M, Mpango R (2020). A typology of modifications to peer support work for adults with mental health problems: systematic review, Br J Psychiatry, 216(6), 301-7. doi: 10.1192/bjp.2019.264

Puschner B, Repper J, Mahlke C, Nixdorf R, Basangwa D, Nakku J, Ryan G, Baillie D, Shamba D, Ramesh M, Moran G, Lachmann M, Kalha J, Pathare S, Müller-Stierlin A, Slade M (2019). Using Peer Support in Developing Empowering Mental Health Services (UPSIDES): Background, Rationale and Methodology. Ann Glob Health, 85(1), 53, 1–10. doi: 10.5334/aogh.2435

Ryan G, Semrau M, Nkurunungi E, Mpango R. (2019). Service user involvement in global mental health: what have we learned from recent research in low and middle-income countries? Curr Opin Psychiatr 2019;32:355–60. doi: 10.1097/YCO.0000000000000506

Puschner B. (2018) Peer support and global mental health. Epidemiol Psychiatr Sci, 27(5), 413-414. doi:10.1017/S204579601800015X

Books and book chapters

Conference Contributions

2023: 9th Qualitative Research Conference

Adler-Ben Dor I, Moran GS (2023). Proximity and distance of stakeholders in the mental health rehabilitation system in Israel in relation to the use of self-disclosure among PSW. Paper at The 9th Qualitative Research Conference, 15/2/2023, Ben-Gurion University of the Negev, Beer Sheva, Israel. Download

Grayzman A, Moran GS (2023). Perspectives and experiences of service users who participated in peer support intervention in Mental Health services: Qualitative findings from the Israeli sub-research of UPSIDES international project – Using Peer Support In Developing Empowering Mental Health Services. The 9th Qualitative Research Conference, 15/2/2023, Ben-Gurion University of the Negev, Beer Sheva, Israel. Download

2022: WPA African Regional Congress, Link

Nakku J, Shamba D (2022). Implementing and evaluating peer support globally: the UPSIDES study. Symposium at WPA African Regional Congress,
08-10/12/2022, Hammamet, Tunisia.

Puschner B (2022). Peer Support – a global perspective: international research on peer support and the UPSIDES project. Paper in symposium “Implementing and evaluating peer support globally: the UPSIDES study” at WPA African Regional Congress, 08-10/12/2022, Hammamet, Tunisia.

Hiltensperger R (2022). Implementation of a peer support intervention: a cross-cultural Theory of Change approach. Paper in symposium “Implementing and evaluating peer support globally: the UPSIDES study” at WPA African Regional Congress, 08-10/12/2022, Hammamet, Tunisia.

Shamba D (2022). Opportunities for scaling up peer support for people with mental illness in low resources settings. Paper in symposium “Implementing and evaluating peer support globally: the UPSIDES study” at WPA African Regional Congress, 08-10/12/2022, Hammamet, Tunisia.

Nakku J (2022). UPSIDES peer support at Butabika Hospital, Uganda. Paper in symposium “Implementing and evaluating peer support globally: the UPSIDES study” at WPA African Regional Congress, 08-10/12/2022, Hammamet, Tunisia.

2022: GACD, Link

Hiltensperger R, Kalha J, Puschner B (2022). Using Peer Support In Developing Empowering Mental Health Services (UPSIDES, MH23). Paper presented as part of “Project presentations “, GACD Research Programme Workshop, 09/11/2022, online.

Hiltensperger R, Kalha J, Girit S, UPSIDES Peer Support Workers (2022). UPSIDES Coffee Table Book. Presented as part of Knowledge Sharing Competition, GACD Annual Scientific Meeting, 07-08/12/2022, London, UK.

Kalha, J (2022). Sustainability and impact beyond the project timeline (panel discussion). GACD Annual Scientific Meeting, 07-08/12/2022, London, UK.

2022: ENMESH

Manfred Lohner*, Lisa Wenzel*, Stefan Bilmayer, Maria Haun, Ramona Hiltensperger, David Meinecke, Martin Peters, Claudia Rohrmoser, Sabine Rogg, Celine Scheffold, Maria Wagner, Iris Zimmermann & Bernd Puschner (2022) Peer support in the UPSIDES study: peer support workers' perspective. Poster, 14^th International ENMESH conference. Download, DOI

2020: DGPPN

Mahlke C, Kalha J (2020). UPSIDES: a global peer support project. Symposium at DGPPN Kongress (online), 26-28/11/2020: Download

Nixdorf R., Heuer I. (2020). UPSIDES: development of a global peer support intervention. Paper in Symposium “UPSIDES: a global peer support project”, DGPPN Kongress (online), 26-28/11/2020: Watch

Kalha J. (2020). Peer support: experiences from Uganda, Tanzania and India. Paper in Symposium “UPSIDES: a global peer support project”, DGPPN Kongress (online), 26-28/11/2020: Watch

Ryan G. (2020). Peer support and corona: challenges and outlook. Paper in Symposium “UPSIDES: a global peer support project”, DGPPN Kongress (online), 26-28/11/2020: Watch

Wenzel L., Moran G. (2020). Implementation of the UPSIDES peer support intervention: first experiences from Israel and Germany. Paper in Symposium “UPSIDES: a global peer support project”, DGPPN Kongress (online), 26-28/11/2020: Watch

2020: GACD

Nixdorf (2020). Development of a global mental health peer support worker training program. Oral presentation on poster (2nd prize poster competition) during plenary session, GACD Annual Scientific Meeting, 10-13/11/2020, online via Zoom. Download

Nixdorf R., Charles A., Gai Meir L., Garber-Epstein P., Hadas Grundman S., Hiltensperger R., Kulkarni A., Mtei R., Puschner B., Ryan G., Slade M., Mahlke C. (2020). Development of a global mental health peer support worker training program. Poster, GACD Annual Scientific Meeting, 10-13/11/2020, online: Download

Wenzel L, Kalha J, Puschner, UPSIDES study group (2020). Using Peer Support In Developing Empowering Mental Health Services (UPSIDES, MH23): Project update. Paper presented as part of “Project presentations (streamed)”, GACD Annual Scientific Meeting, 10-13/11/2020, online via Zoom. Download

2019:

Nakku J. (2019). Developing Service User Involvement in Mental Health Care in Uganda. Poster, GACD Annual Scientific Meeting, 13-15/11/2019, Bangkok, Thailand: Download

2018:

Hiltensperger, R., Basangwa, D., Mpango, R., Karuhanga, S., Ryan, G., Mahlke, C., Slade, M., Shamba, D., Kalha, J., Puschner, B., Nakku, J. (2018). Implementation of peer support for people with mental illness in different resource settings. Poster (1st prize poster competition) at GACD Annual Scientific Meeting, 12-16/11/2018, Sao Paolo, Brazil: Download

Puschner, B., Slade, M., Mahlke, C.I., Basangwa, D., Nakku, J., Ryan, G., Shamba, D., Moran, G., Kalha, J. (2018). Using Peer Support In Developing Empowering Mental Health Services (UPSIDES, MH23). Paper shown in constant rotation with other project presentations at GACD Annual Scientific Meeting, 12-16/11/2018, Sao Paolo, Brazil: Download

Translation of scales used in the UPSIDES RCT

These are the translations of outcome measures that have been developed during the UPSIDES project. If a cell is empty, it means a translation was already freely available before the UPSIDES study. The UPSIDES fidelity scale was developed and translated as part of the project, the English Original can be found here: UFS_English.

The scales are abbreviated below as follows:

UPSIDES Fidelity Scale (UFS), Social Inclusion Measure (SIM), Empowerment Scale (ES), Stages of Recovery Instrument (STORI-30), brief INSPIRE (brief INSPIRE), Health of the Nation outcome scales (HoNos), Client Sociodemographic and Service Receipt Inventory (CSSRI), Threshold assessment grid (TAG), Mental Illness: Clinician's Attitudes Scale (MICA-4), Recovery-oriented peer provider (ROPP), Resilience Scale for Adults (RSA-R).